Vol. 18 No. 2 (2024)

  • Open Access

    Article

    Article ID: 3799

    Construire une question de recherche dans l’interdisciplinarité

    by Elsa Bansard

    Psycho-Oncologie, Vol.18, No.2, 2024; 15 Views

    Interdisciplinarity is strongly promoted by institutions and is the subject of abundant scientific publications on its history, definition, and typologies, as well as on its obstacles and challenges. This article aims to provide insight into the development of an interdisciplinary research question. We will present the path that led from an administrative management question to a doctorate in philosophy of medicine on supportive care, thanks to a rich collaboration between a wide range of academic, hospital, and association players. An analysis of the literature will show how the long history of science underpins disciplinary issues in the development of a research question. The method will make visible the long dialogue between the partners in this project. The results will show how the research question evolved throughout the project. Finally, the discussion will propose three concepts to put interdisciplinarity into perspective: collaboration, attention, and tranquility.

  • Open Access

    Article

    Article ID: 3800

    Se situer dans la continuité d’un dialogue interdisciplinaire de recherche : entre transmission et renégociation du « commun »

    by Cassandra Patinet

    Psycho-Oncologie, Vol.18, No.2, 2024; 8 Views

    This paper aims to highlight the challenges of continuing and resuming interdisciplinary dialogue between physicians and psychologists in the field of research, after the institutionalization and establishment of this collaboration at the institutional level. By comparing two research frameworks that follow each other in the same research field, we will examine the negotiation process of interdisciplinary dialogue and the ways in which it manifests in the research field, mediated by the interaction between healthcare professionals and researchers.

  • Open Access

    Article

    Article ID: 3804

    IMPACT de la déprivation sociale sur les difficultés psychosociales au décours d’un cancer pédiatrique : une étude prospective

    by Fanny Delehaye, Olivier Dejardin, Isabelle Pellier, Ludivine Launay, Maxime Esvan, Damien Bodet, Liana Carausu, Julien Lejeune, Frédéric Millot, Caroline Thomas, Virginie Gandemer, Arnaud Alves, Julien Rod

    Psycho-Oncologie, Vol.18, No.2, 2024; 23 Views

    The posttreatment period is a key part of the management of pediatric cancer. During this time, school and psychological difficulties have been described in childhood cancer survivors (CCS) and can be prognostic for the success of social reintegration. This study estimated the influence of the household’s socioeconomic status (SES) on these psychosocial difficulties. This study is based on a prospective multicentric database and focused on children who received a psychosocial evaluation during their follow-up from 2013 to 2020. We retrieved data on school and psychological difficulties. Household SES was estimated by a social deprivation score. Data from1003 patients were analyzed. School difficulties were noted in 22% of CCS. A greater social deprivation was significantly associated with school difficulty. Tumor relapse, treatment with hematopoietic stem cell transplantation, and central nervous system (CNS) tumors remained significant risk factors. In the subgroup of CNS tumors, school difficulties were increased and associated with greater social deprivation. Psychological difficulties were not associated with the deprivation score. There is a link between SES and school difficulties in CCS. Further investigations should be carried out for children with CNS tumors, which is the population of the greatest concern.

  • Open Access

    Article

    Article ID: 3810

    Expérience des parents face à l’accompagnement pédiatrique en HAD : étude exploratoire qualitative

    by Laure Salomé, Jérémy Martin, Camille Baussant-Crenn, Cécile Flahault

    Psycho-Oncologie, Vol.18, No.2, 2024; 11 Views

    Aim:  To investigate parents’ experience of home care for children in oncology in order to identify the benefits, expectations, and possible difficulties associated.  Material and methods:  A qualitative method was adopted, with non-directive interviews conducted with nine participants, then analyzed using thematic content analysis.  Results:  The main recurring themes in the discourse include: (1) relief, (2) positive representation of home, (3) positive representation of home care, and (4) negative representation of home care. For these parents, home care appears to be positive overall, even though the introduction of home care is often reported as a source of stress for them.  Conclusion:  These results must be interpreted with caution, but they do support previous research and highlight certain recommendations for further improving this experience, particularly for parents, but also for the sick child and the family.

  • Open Access

    Review

    Article ID: 3803

    SCHOOL DIFFICULTIES in Children Cancer Survivors: A Narrative Review and a Teacher Point-of-View

    by Fanny Delehaye, Caroline Fayet, Julien Lejeune

    Psycho-Oncologie, Vol.18, No.2, 2024; 13 Views

    School difficulties are common in children cancer survivors and may be prognostic for the success of the patient social reintegration after the disease. Here, we carry out a narrative review of the literature from 2001 to 2022 to assess the school difficulties of these patients, the predictive factors of these difficulties, and the possible long-term consequences. We punctuate this review the practical point-of-view of a teacher dedicated to our hospital, who works with children with chronic diseases such as cancer. Therefore, we expose possible barriers and solutions to improve the scholar reintegration and limit the impact of cancer on the academic achievement.

  • Open Access

    Review

    Article ID: 3805

    Processus pour le développement d’une stratégie d’évaluation de la qualité de vie en cancer avancé pédiatrique

    by Lye-Ann Robichaud, Marianne Olivier-D’Avignon, Julie Felipe, Hermann Ferdinand Thomas Ehrenfeld, Marc-Antoine Marquis, Bruno Michon, Émélie Rondeau, Mathias Tyo-Gomez, Michel Duval, Serge Sultan

    Psycho-Oncologie, Vol.18, No.2, 2024; 19 Views

    In pediatric advanced cancer, i.e., when cancer-targeted treatments are not effective, care provided to patients is of palliative nature. It aims at limiting symptoms and optimizing quality of life (QoL). To orient care, it is necessary to know and measure what is really important for young people. Unfortunately, tools are still scarce in this context. The aim of this paper is to describe the development process of a new QoL assessment method, the Advance QoL program. This is specifically designed for the clinical context of pediatric advanced cancer. Three previous studies carried out by our team identified seven important QoL domains for this population. We developed a tool named Advance QoL—parent/caregiver version. A current study aims to develop self-reported versions of the Advance QoL for children (8–12 years) and adolescents (13–18 years) with advanced cancer. In the very near future, the Advance QoL tool will be available in three versions (parents/caregivers, children, and adolescents) ready to be tested in validation studies. Regular assessment of the QoL of young people with cancer is a central process in defining targets for care and should be carried out throughout the trajectory, including when cancer is at an advanced stage, i.e., when no standard treatment options are available.

  • Open Access

    Commentary

    Article ID: 3801

    Mener des recherches pluridisciplinaires en SHS dans le domaine du cancer : quels leviers, quels freins ?

    by Sylvie Dolbeault, Manon Fontaine, Diane Boinon

    Psycho-Oncologie, Vol.18, No.2, 2024; 7 Views

    This paper summarizes the work held at the Cancéropôle Ile-de-France's annual SHS research seminar on the theme: Pluridisciplinarity and methods for SHS research in the field of cancer. After clarifying the concepts of pluri-, inter-, and transdisciplinarité, it aimed to describe how this type of research is carried out in practice, addressing successively: the role of stakeholders and their respective positions, the need for a shared language, the various temporalities involved and task sharing, the interview and analysis methods as well as the implication of patient-researchers. It highlighted the personal qualities required to practice this type of research, such as psychological flexibility and adaptability, a strong desire for collaborative work, acceptance of risk, and a humble stance.

  • Open Access

    Short Communication

    Article ID: 3821

    Mettre en dialogue disciplines et personnes concernées par le cancer pour améliorer le parcours des soins en oncologie

    by Joëlle Kivits, Frédérique Claudot, Sandrine de Montgolfier, Silvia Rossi

    Psycho-Oncologie, Vol.18, No.2, 2024; 18 Views

    Interdisciplinarity and participatory research have become the guiding principles of cancer research. But what are the practical forms and methods? Based on the experience of 3 successive research projects aimed at improving cancer care pathways–PARCA1, PARCA2 and 4P–we present the encounters between researchers on the one hand, and between these same researchers and patients and health professionals on the other. Gradually, these meetings have led to the co-construction of projects and the shared conduct of research. The motivations behind the participatory approach are highlighted, as well as the ‘step-by-step’ approach needed to familiarize the people involved with the research process, and the limits of the approach: while everyone’s position tends to be adjusted as the projects progress, there is still an imbalance between the researchers and the people involved.