The Effectiveness of Social Media Support for Caregivers: A Systematic Review

  • Wenlin Wan The People’s Hospital of Leshan Institute of Technology Tralee Ireland, The People’s Hospital of Leshan
  • Leixi Li The People’s Hospital of Leshan Institute of Technology Tralee Ireland, The People’s Hospital of Leshan
  • Xiaoli Zuo The People’s Hospital of Leshan
  • Yingying Fan The People’s Hospital of Leshan
Keywords: Social Media, Caregiver, Burden, WeChat

Abstract

Background: Caring for patients living with long term conditions is a long-term task. The augmenting use of social media (SM) supports for health information and communication has created new opportunities for new models of health-care. Objectives: This study aimed to explore the effectiveness of SM support for caregivers. Methods: This systematic review mainly includes research over the past decade on caregivers for chronic diseases, with the results focusing on SM support for caregivers. Results: This literature review found that SM-based interventions can meet caregivers’ needs and have a positive impact on caregiver burden (CB) of chronic diseases such as cancer, dementia and stroke. Experimental studies of health interventions for stroke caregivers (SCs) through WeChat interventions have been limited. Conclusion: More quantitative studies are needed in the future to explore the effectiveness of WeChat as an intervention in the burden of SCs.

References

WHO Gets New Advice on Curbing Deadly Noncommunicable Diseases [Internet]. World Health Organization; 2019. Available from: https://www.who.int/news-room/detail/10-12-2019-who-gets-new-advice-on-curbing-deadly-noncommunicable-diseases.

Saha A, Alleyne G. Recognizing noncommunicable diseases as a global health security threat. Bulletin of the World Health Organization 2018; 96(11): 792.

De Vliegher K, Aertgeerts B, Declercq A, et al. Shifting care from hospital to home: A qualitative study. Primary Health Care 2015; 25(9): 26–33.

Committee on the Future Health Care Workforce for Older Americans, I.o.M. Retooling for an aging America: Building the health care workforce. 2018. p. 241-270.

McIlfatrick S, Doherty LC, Murphy M, et al. ‘The importance of planning for the future’: Burden and unmet needs of caregivers’ in advanced heart failure: A mixed methods study. Palliative Medicine 2018; 32(4): 881–890.

McLennon SM, Habermann B, Davis LL. Deciding to institutionalize: Why do family members cease caregiving at home? Journal of Neuroscience Nursing 2010; 42(2): 95–103.

Han CJ, Lee YJ, Demiris G. Interventions using social media for cancer prevention and management: A systematic review. Cancer Nursing 2018; 41(6): 19–31.

Hagg E, Dahinten VS, Currie LM. The emerging use of social media for health-related purposes in low and middle-income countries: A scoping review. International Journal of Medical Informatics 2018; 115: 92–105.

Han Y, Liu Y, Zhang X, et al. Chinese family caregivers of stroke survivors: Determinants of caregiving burden within the first six months. Journal of Clinical Nursing 2017; 26(23-24): 4558–4566.

Bhattacharjee M, Vairale J, Gawali K, et al. Factors affecting burden on caregivers of stroke survivors: Population-based study in Mumbai (India). Annals of Indian Academy of Neurology 2012; 15(2): 113.

Oni OD, Olagunju AT, Okpataku CI, et al. Predictors of caregiver burden after stroke in Nigeria: Effect on psychosocial well-being. Indian Journal of Psychiatry 2019; 61(5): 457.

Cheng HY, Chair SY, Chau JPC. Effectiveness of a strength-oriented psychoeducation on caregiving competence, problem-solving abilities, psychosocial outcomes and physical health among family caregiver of stroke survivors: A randomised controlled trial. International Journal of Nursing Studies 2018; 87: 84–93.

Greenwood N, Mackenzie A. Informal caring for stroke survivors: Meta-ethnographic review of qualitative literature. Maturitas 2010; 66(3): 268–276.

Hu P, Yang Q, Kong L, et al. Relationship between the anxiety/depression and care burden of the major caregiver of stroke patients. Medicine 2018; 97(40): e12638.

Cameron JI, Cheung AM, Streiner DL, et al. Stroke survivors’ behavioral and psychologic symptoms are associated with informal caregivers’ experiences of depression. Archives of Physical Medicine and Rehabilitation 2006; 87(2): 177–183.

Jaracz K, Grabowska-Fudala B, Górna K, et al. Caregiving burden and its determinants in Polish caregivers of stroke survivors. Archives of Medical Science: AMS, 2014; 10(5): 941.

Akosile CO, Banjo TO, Okoye EC, et al. Informal caregiving burden and perceived social support in an acute stroke care facility. Health and Quality of Life Outcomes 2018; 16(1): 57.

Saletti-Cuesta L, Tutton E, Langstaff D, et al. Understanding informal carers’ experiences of caring for older people with a hip fracture: a systematic review of qualitative studies. Disability and Rehabilitation 2018; 40(7): 740–750.

Lundman B, Aléx L, Jonsén E, et al. Inner strength—A theoretical analysis of salutogenic concepts. International Journal of Nursing Studies 2010; 47(2): 251–260.

Mea VD. What is e-Health (2): The death of telemedicine? Journal of Medical Internet Research 2001; 3(2): E22.

Ploeg J, Ali MU, Markle-Reid M, et al. Caregiver-focused, web-based interventions: Systematic review and meta-analysis (part 2). Journal of Medical Internet Research 2018; 20(10): e11247.

Wasilewski MB, Stinson JN, Cameron JI. Web-based health interventions for family caregivers of elderly individuals: a scoping review. International Journal of Medical Informatics 2017; 103: 109–138.

Baruah TD. Effectiveness of social media as a tool of communication and its potential for technology enabled connections: A micro-level study. International Journal of Scientific and Research Publications 2012; 2(5): 1–10.

Schein R, Wilson K, Keelan J. Literature review on effectiveness of the use of social media. Brampton, Canada: Region of Peel 2010.

Bertot JC, Jaeger PT, Hansen D. The impact of polices on government social media usage: Issues, challenges, and recommendations. Government Information Quarterly 2012; 29(1): 30–40.

Prestin A, Vieux SN, Chou WYS. Is online health activity alive and well or flatlining? Findings from 10 years of the Health Information National Trends Survey. Journal of Health Communication 2015; 20(7): 790–798.

Ramanadhan S, Mendez SR, Rao M, et al. Social media use by community-based organizations conducting health promotion: A content analysis. BMC Public Health 2013; 13(1): 1129–1138.

Bloom RD, Beck S, Chou W, et al. In their own words: Experiences of caregivers of adults with cancer as expressed on social media. Oncology Nursing Forum 2019; 46(5); 617–630.

Zhang X, Wen D, Liang J, et al. How the public uses social media wechat to obtain health information in China: A survey study. BMC Medical Informatics and Decision Making 2017; 17(2): 66–75.

Man L. Characteristics and skills of text editing under WeChat public platform. Editorial Transactions (Chinese) 2017; 3: 116–120.

Hui T. Research on WeChat according to communication study and its influence. Chongqing Social Sciences 2013; 9(11): 61–66.

Hudnut-Beumler J, Po’e E, Barkin S. The use of social media for health promotion in hispanic populations: a scoping systematic review. JMIR Public Health and Surveillance 2016; 2(2): e32.

Li W, Han LQ, Guo YJ, et al. Using WeChat official accounts to improve malaria health literacy among Chinese expatriates in Niger: An intervention study. Malaria Journal 2016; 15(1): 567.

He C, Wu S, Zhao Y, et al. Social media “promoted weight loss among an occupational population: Cohort study using a wechat mobile phone app-based campaign. Journal of Medical Internet Research 2017; 19(10): e357.

Cao Y, Lin S-H, Zhu D, et al. WeChat public account use improves clinical control of cough-variant asthma: A randomized controlled trial. Medical Science Monitor: International Medical Journal of Experimental and Clinical Research 2018; 24: 1524.

Bode L, Vraga EK. In related news, that was wrong: The correction of misinformation through related stories functionality in social media. Journal of Communication 2015; 65(4): 619–638.

Muditha WM, Kerstin S, Carina E. Caring for stroke survivors: Experiences of family caregivers in Sri Lanka—A qualitative study. Topics in Stroke Rehabilitation 2018; 25(6): 1–6.

Bell J. Doing your research project: A guide for first-time researchers. McGraw-Hill Education (UK); 2014.

Parahoo K. Nursing research: Principles, process and issues. London: Palgrave Macmillan; 2014.

Denham AM, Baker AL, Spratt NJ, et al. YouTube as a resource for evaluating the unmet needs of caregivers of stroke survivors. Health informatics journal 2019; 26(3).

Bucki B, Spitz E, Etienne AM, et al. Health capability of family caregivers: How different factors interrelate and their respective contributions using a Bayesian approach. BMC Public Health 2016; 16(1): 364–373.

Alotaibi NM, Samuel N, Wang J, et al. The use of social media communications in brain aneurysms and subarachnoid hemorrhage: a mixed-method analysis. World Neurosurgery 2017; 98: 456–462.

Nagelhout ES, Linder LA, Austin T, et al. Social media use among parents and caregivers of children with cancer. Journal of Pediatric Oncology Nursing 2018; 35(6): 399–405.

Gage-Bouchard EA, LaValley S, Mollica M, et al. Cancer communication on social media: Examining how cancer caregivers use Facebook for cancer-related communication. Cancer Nursing 2017; 40(4): 332–338.

Núñez-Naveira L, Alonso-Búa B, de Labra C, et al. UnderstAID, an ICT platform to help informal caregivers of people with dementia: A pilot randomized controlled study. BioMed Research International 2016.

Dam AE, van Boxtel MP, Rozendaal N, et al. Development and feasibility of Inlife: A pilot study of an online social support intervention for informal caregivers of people with dementia. PloS One 2017; 12(9).

Luo J, Dong X, Hu J. Effect of nursing intervention via a chatting tool on the rehabilitation of patients after Total hip Arthroplasty. Journal of Orthopaedic Surgery and Research 2019; 14(1): 417.

Lapid MI, Atherton PJ, Clark MM, et al. Cancer caregiver: Perceived benefits of technology. Telemedicine and e-Health 2015; 21(11): 893–902.

Liu J, Zheng X, Zhang X, et al. 2019. The evidence and future potential of Wechat in providing support for Chinese parents of pediatric patients undergoing herniorrhaphy. Journal of Transcultural Nursing 2019.

Pierce LL, Steiner V. Usage and design evaluation by family caregivers of astroke intervention website. The Journal of Neuroscience Nursing: Journal of the American Association of Neuroscience Nurses 2013; 45(5): 254.

Daniel K. Using the TACT framework to learn the principles of rigour in qualitative research. Electronic Journal of Business Research Methods 2019; 17(3): 118–129.

Zhou B, Zhang J, Zhao Y, et al. Caregiver-delivered stroke rehabilitation in rural China: The RECOVER randomized controlled trial. Stroke2019; 50(7): 1825-1830.

Dong Y, Wang P, Dai Z, et al. Increased self-care activities and glycemic control rate in relation to health education via Wechat among diabetes patients: A randomized clinical trial. Medicine 2018; 97(50).

Speziale HS, Streubert HJ, Carpenter DR. Qualitative research in nursing: Advancing the humanistic imperative. Lippincott Williams & Wilkins; 2013.

Higgins JP, Altman DG, Gøtzsche PC, et al. The Cochrane Collaboration’s tool for assessing risk of bias in randomised trials. BMJ 2011; 343: d5928.

Higgins JP, Thompson SG, Deeks JJ, et al. Measuring inconsistency in meta-analyses. BMJ 2003; 327(7414): 557–560.

Wang Y, McKee M, Torbica A, et al. Systematic literature review on the spread of health-related misinformation on social media. Social Science & Medicine 2019; 240: 112552.

Published
2020-11-02
Section
Review Articles