L’impact du cancer de l’adolescent et du jeune adulte – AJA – sur le fonctionnement familial : étude des relations familiales en termes d’adaptabilité et de cohésion
The Impact of Adolescent and Young Adult Cancer-AJA-on Family Functioning. Study of Family Relationships in Terms of Adaptability and Cohesion
Abstract
Objectives: The arrival of cancer in adolescents and young adults (aged 15 to 24 years)-Adolescents and young adults (AJA)- corresponds to a fragile period during which the adulthood of the young person and the evolution of family ties mobilize the family as a whole. Therefore, cancer, beyond its individual traumatic dimension, affects the whole family, which can modify family ties and family functioning. Our objective is to evaluate family functioning from the complex model evaluating cohesion and adaptability when an adolescent or young adult has cancer. Methods: Adolescents and young adults with cancer (n = 41), mothers (n = 41), and fathers (n = 13) participated in this study. They completed the Family Adaptation and Cohesion Scales (FACES III) questionnaire. Family functioning when an aya is ill has been compared to that of families without any disease. Results: a comparison of the mean scores of perceived cohesion and adaptability of face III indicates no significant difference for cohesion. In contrast, the averages of the adaptability scores of our sample with those of the general population indicate that families with cancer hais generally feel more “adaptable” than the non-clinical population. These results are statistically significant for AJA, but also for mothers and fathers. Regarding the mean scores of ideal cohesion and ideal adaptability, there are no significant differences between fathers in our sample and fathers in the general population. In contrast, mothers in our sample had less ideal adaptability than those in the general population. In aya patients with cancer, the scores of both adaptability and cohesion were significantly different from those of non-diseased adolescents. Conclusion: Cancer leads to many changes in family relationships, making it difficult to empower the young patient and latent the evolution of the relationship.
Résumé
Objectifs: L’arrivé du cancer chez les adolescents et les jeunes adultes (âgés de 15 à 24 ans) - adolescents et jeunes adultes (AJA) - correspond à une période fragile pendant laquelle le devenir adulte du jeune et l’évolution des liens familiaux mobilisent la famille dans son ensemble. Dès lors, le cancer, au-delà de sa dimension individuelle traumatique, touche toute la famille, pouvant modifier les liens familiaux et le fonctionnement familial. Notre objectif est d’évaluer le fonctionnement familial à partir du modèle circomplexe évaluant la cohésion et l’adaptabilité, quand un adolescent ou jeune adulte est atteint de cancer. Matériel et méthode: Des adolescents et jeunes adultes atteints de cancer (n = 41), des mères (n = 41), des pères (n = 13) ont participé à cette étude. Ils ont rempli le questionnaire Family Adaptation and Cohesion Scales (FACES III). Le fonctionnement familial lorsqu’un AJA est malade a été comparé à celui des familles qui ne sont confrontées à aucune maladie. Résultats: La comparaison des scores moyens de cohésion et d’adaptabilité perçus de la FACES III indique aucune différence significative pour la cohésion. En revanche, les moyennes des scores d’adaptabilité de notre échantillon avec celles de la population générale indiquent que les familles avec un AJA malade du cancer se sentent globalement plus « adaptable » que la population non clinique. Ces résultats sont statistiquement significatifs pour les AJA, mais aussi pour les mères et les pères. Concernant les scores moyens de cohésion idéale et d’adaptabilité idéale, il n’y a pas de différences significatives entre les pères de notre échantillon et les pères issus de la population générale. Par contre, les mères de notre échantillon proposaient une adaptabilité idéale moindre que celles de la population générale. Chez les AJA atteints d’un cancer, les scores à la fois d’adaptabilité et de cohésion se distinguaient significativement de ceux issus des adolescents non-malades. Conclusion: Le cancer entraîne bien des changements au sein des relations familiales, rendant difficile l’autonomisation du jeune malade et mettent en latence l’évolution du lien.
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